Jaydens life outside the box

This is a story about a little boy with Autism. We wil follow him through his remarkable life, join us.

Name:
Location: Australia

Tuesday, May 30, 2006

WELL AGAIN

Abou 2 weeks ago Jayden was sick the first Doc said Gastro turnes out it was a viral infection. He threw up in the bakery, the car, my loungroom, the kitchen and his bed room. He was miserable, and so was i. So now he has taken a few steps backwards and some of the things he could do before he cant so we have to work on that at the moment. Hes back at preschool, it was the longest week of my life.
But good news is he is sleeping longer in his bed, still falling asleep on the floor, but thats ok. We got him a cat which we thought would be good for him, apparently he is allergic. He broke out in hives and he looked terrible, so my friend Jessica took the cat who we names PERDY, she has a new name now PIXIE. It was a shame because i am a cat person and i used to have cats but our old neighbour caught them in his cat trap and killed them, and the cops did nothing. But i wont wright about that it still upsets me.
Tomorrow we are going to Bens nose specialist to see if he needs surgery as he hasnt been able to smell since Xmas, fingers crossed he dosnt.
Well thats all ihave this week hopefully i will have more another day.

Sunday, May 14, 2006

Mothers Day

Sunday 14th May - Mothers Day!!!!!!
Today is my 3rd mothers day, we had a quiet day i didnt do anything my husband did the house work. Which was good and Jaden gave me heaps of cuddles, even when i asked for one, he turned to me and hugged me, i was sooooo proud of him. My pressies!- Jayden gave me a set of kitchen scales(he stood on my old pair) and some makeup, Ben knows i never buy myself anything so he got me something i would never take the time to buy. So i am very happy with what i got. For me i wouldnt care if i didnt get any gifts id be happy just to hear JadyMac talk to me or just call me MUM. Mothers day is hard for me i feel like im missing out on something because im not having the same experience as other mothers, is that selfish of me????
My own Mother tried to ruin my day, i havent seen my mum for 10 years and she SMS'd me thismorning. I was so not happy about that, i dont want her back in my life she walked out on us when i was 15 and she never looked back. People say forgive her but i cant, she destroyed my family and i hate her for that. Mothers day gives me conflicting emotions some great some not so great. Any way its not important whats important is that Jayden iss in his Bed tonight, success!!!!! he falls asleep on the floor first and then we can put him in his bed. So good news.
Thats all from me to all the mothers who may read my site HAPPY MOTHERS DAY!!!!!!!!!!!!!!!!!!!!!

Tuesday, May 09, 2006

JadyMac and his Dad


This photo was taken in January, i keep this one in my wallet. The photo in the background is of course Jayden he was 3 months old, even then he had a huge smile.
He looks like his dad dosnt he? he'll be tall like him too, Ben is 6ft where as i am only 4ft 10", tiny hey? Jayden already comes up to my boobs, Ben jokes that when Jayden goes to kindy he'll be taller than me. HaHaHa.
So there are my 2 favourite men.
'Till next time TINA

Still Sleeping on The Floor

We just cannot get Jayden to sleep in his bed, we put him on his bed and by the time we get to his door he is laying on the floor, so after he falls asleep we pick him up and try again he wakes and and wont lay down and then gets upset and goes back to his corner. I am running out of ideas, i am concerned he will get a sore back always being on the floor. He wont even sleep on his mini fold out couch, or with a pillow.
Everything else is going so well at the moment we just cant get this right. Hes eating a hell of a lot better and he is making heaps of eye contact and he is also babbling alot every now and again a word comes out but its only said once. So his progress(apart from the bed issue) is going well i am so proud of him. I love the way he ALWAYS wants a cuddle, most Autistic kids hate being touched we were lucky. I mean it took some work he hated being cuddled unless he hurt himself so i persisted and just kept picking him up until he liked being held. It took some time but i wasnt giving up, i dont think i could handle having a child who refused to cuddle me.
Now he clings to me like glue i may of over done it, Nah i enjoy him always wanting to be near me, one day it may change ya never know.
At the moment he loves to line things up whatever he can get his hands on he will line up, pencils, sticks, balls, creditcards, my drivers liscence anything. He likes to read by himself and he likes to play with the curtains.
He is awake at the moment i tried to put him in bed now he is crying, i feel bad for him i dont like upsetting him but i dont know what else to do. I cant force him to get in bed he dosent understand which is why this is so hard. Everyone who dosnt have an Autistic child tells me how to do it but they just dont get how difficult it is, I cant just say STAY, i wish it was that easy.
So thats whats happining in Jaydens world today.